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Apparently I have Crohn's Disease

  • RBW Spartan said...

    I had colitis. Colon removed. Temporary colostomy bag. All better now. Feel free to pm me and we can chat.

    Robocolon!!!

    signature image

    2nd City Sparty

  • foshIZZO said...

    I'm dead serious when I say this: GET A SECOND OPINION

    A friend of mine was diagnosed with Crohns. After 18 months it wasn't getting better and the drug/steroid they put him on completely deteriorated his hips. He went to Mayo to get a second opinion and it turns out he had a food borne bacteria that was interacting negatively with his blood because of his blood type. The result was a complete cure of the ailment but he is 35 and has had both hips replaced and is on constant pain meds for his hips. The steroid completely killed his hips.

    Thanks for this, but, this is my second opinion. I was a complete skeptic because I had none of the traditional "crohn's symptoms," but today's Dr's appt confirmed the initial diagnosis.

    Jools Holland

  • Jools Holland said...

    Thanks for this, but, this is my second opinion. I was a complete skeptic because I had none of the traditional "crohn's symptoms," but today's Dr's appt confirmed the initial diagnosis.

    my mom was diagnosed recently with a gluten allergy which only manifests itself in her being constantly anemic. All my life she's been just pouring salt on her plate and eating it with dinner and after 60 years she's finally got it diagnosed. She didn't really have other symptoms just sort of fatigue and things commonly associated with anemia. She says she doesn't feel any different, but you can tell in her behavior.

    Sparty is our mascot, we are Spartans.

    ConQueso

  • You may notice a serious lack of bathrooms in Spartan Stadium now. And dive bars might not hold the same appeal.

    Sparty is our mascot, we are Spartans.

    ConQueso

  • ConQueso™ said...

    You may notice a serious lack of bathrooms in Spartan Stadium now. And dive bars might not hold the same appeal.

    That's the thing though, I don't have any issues with sudden, uncontrollable urges to take a shit. I don't want to be the patient that questions everything, but I also don't want to be a sheep that just nods his head and goes along with whatever course of treatment is recommended.

    Jools Holland

  • My brother's daughter was diagnosed with Crohn's by UofM doctors about a year ago. They wanted to put her on steroids. My brother, a consumate pain in the ass (pardon the pun) took his daughter to some place in Chicago for a second opinion. In the end her problem was cured with dietary changes. (She seems to allergic to just about everything.) When he went back to UofM and told them what they found in Chicago he told them to stuff it. Not saying this is the case with you but I agree with those that suggest getting a second opinion. Find an expert in this kind of disease with extensive experience diagnosing and treating it.
    Good luck!

    Golf Czar

  • My coworker's son was diagnosed with it about a year ago. I did a little research on it. I believe it is one of the diseases that you could get medicinal marijuana for.

    Beachnutts1

  • Jools Holland said...

    That's the thing though, I don't have any issues with sudden, uncontrollable urges to take a shit. I don't want to be the patient that questions everything, but I also don't want to be a sheep that just nods his head and goes along with whatever course of treatment is recommended.

    That's good. It's certainly one of the more stigmatizing symptoms you can have as an adult.

    Sparty is our mascot, we are Spartans.

    ConQueso

  • Interesting, i hadn't heard of this variation.

    Crohns Disease - The Diarrhea Myth

    One of the biggest reasons I wasn’t properly diagnosed with Crohn’s Disease back in the summer of 2005 when I started to show the symptoms of a fistula connecting my small bowel and bladder is due to what I liked to call The Diarrhea Myth

    mycrohnsdisease.blogspot.com

    Sparty is our mascot, we are Spartans.

    ConQueso

  • Sorry to learn of your condition. One of my best friends has been dealing with this disease for the last twenty years. I know that he has to be careful as to what he eats as some foods trigger a flareup. He's an extremely physically active individual as he participates in snow and water skiing, plays in a basketball league, and is an avid hunter.

    Based on how my friend lives his life it doesn't appear to slow him down too much and it is hardly the end of the world.

    My prayers are with you.

    Spartan4ever

  • Spartan4ever said...

    Sorry to learn of your condition. One of my best friends has been dealing with this disease for the last twenty years. I know that he has to be careful as to what he eats as some foods trigger a flareup. He's an extremely physically active individual as he participates in snow and water skiing, plays in a basketball league, and is an avid hunter.

    Based on how my friend lives his life it doesn't appear to slow him down too much and it is hardly the end of the world.

    My prayers are with you.

    Thanks. I appreciate the thought.

    Jools Holland

  • Jools Holland said...

    C'mon colostomy bag!

    She has that option, however she is a 30 year old single Vietmanese girl. And she doesn't want it for obvious reasons. I think she just watches her diet and deals with the bad days. She does very well with it and raises a lot of money for research for the association.

    The other one had a lot of her intestines removed and alledgedly they put her on Codeine and Vicodin to help plug her up. I think she was just addicted to pain killers. She left the company one day for unknown reasons.

    I hope you have a mild case that doesn't really affect you to much. It may be as simple as cutting out certain foods.

    signature image signature image

    DMBSparty

  • My brother has Crohns and he takes Remicade (sp?), which is a medicine taken through an IV. He takes it every 8 months, and he has been in remission for a while now.

    Sparty2112

  • Blurg...Humira (adalimumab) is a monoclonal antibody against Tumor Necrosis Factor- Alpha (TNF). TNF is a cytokine that basically promotes an inflammatory response. In autoimmune conditions, like Chron's, your immune system has decided to label certain self-proteins as antigens (things that your immune system reacts to; typically a protein present in a bacteria, or a toxin that the bacteria produces, etc) so it triggers your immune system to react like there is something bad there. The local cells release factors (like TNF) that promote other immune cells to come to the area and start some shit with the antigens (which in this case are your colonic tissue). This is good if you have an infection but is damaging if there is nothing wrong.

    So basically, there are two ways to prevent this. Humira binds the TNF that is produced and neutralizes it so it doesn't promote inflammation anymore. Steroids (prednisone) act by going into the cell and bind to the part of the DNA that codes for inflammatory cytokines (like TNF and others) so they just aren't made in general. Both have side effects (immune suppression...more susceptible to infection....prednisone keeps you up at night and causes a variety of problems if used chronically) and Humira is ridiculously more expensive that steroids. With any autoimmune condition, the goal is to try to use the minimum amount of treatment to prevent flare ups. Find a drug that works well and taper it to the minimum you need. Use more if you get a flare up. Eat healthy. Sleep well. Exercise. Don't drink too much alcohol...these are the best things you can outside of pharmaceutical treatment.

    Hope you feel better.

    signature image

    chpueblo22

  • chpueblo22 said...

    . Don't drink too much alcohol...these are the best things you can outside of pharmaceutical treatment.

    Hope you feel better.

    But I like to drink alcohol.

    Jools Holland

  • at least it's not ebola.

    y2kMgrad

  • y2kMgrad said...

    at least it's not ebola.

    I wish it was an STD so that I could give it to UM's fairy QB.

    Jools Holland

  • Jools Holland said...

    So I guess I have come down with the vaguest, most hard to define ailment of all time. The Docs want to put me on something called Humira to put it in remission. Anyone here have any history/advice/knowledge of this disease and/or treatment? I plan on trying for a bunch of anal with the wife before I inevitably die from the condition. Any comments would be appreciated.

    Ask Mike McCready from Pearl Jam about it...He was in pretty bad shape a few years ago but whatever meds or treatments they have him on he is in much better shape now.

    35,600 posts and counting since 09-09-2002. tRCMB Dead Pool Commissioner.

    pulling69

  • My dad had/has colitis. The doctors always went back and fourth on whether it was crohns, colitis or something else. He was dealing with it for the past 20+ years before having his colon removed and a getting jpouch a few years ago. He is currently in the hospital because the 20+ years of steroids effed both his hips and he's getting them replaced.

    Take care of yourself and I hope you can find a treatment that works for you.

    signature image

    Behold the walls of Sparta: 10000 men and every one a brick.

    CORNER BLITZ

  • CORNER BLITZ said...

    My dad had/has colitis. The doctors always went back and fourth on whether it was crohns, colitis or something else. He was dealing with it for the past 20+ years before having his colon removed and a getting jpouch a few years ago. He is currently in the hospital because the 20+ years of steroids effed both his hips and he's getting them replaced.

    Take care of yourself and I hope you can find a treatment that works for you.

    Thanks. I appreciate the sentiment. I just hope that I'm not about to be jerked around for the next 20 years.

    Jools Holland

  • Jools Holland said...

    So I guess I have come down with the vaguest, most hard to define ailment of all time. The Docs want to put me on something called Humira to put it in remission. Anyone here have any history/advice/knowledge of this disease and/or treatment? I plan on trying for a bunch of anal with the wife before I inevitably die from the condition. Any comments would be appreciated.

    Dr Bowel in the house. Been
    the done that, what do you want to know?

    Irritable_Bowel

  • Irritable_Bowel said...

    Dr Bowel in the house. Been the done that, what do you want to know?

    How do I dominate this condition with AUTHORITY?

    Jools Holland

  • Jools Holland said...

    So I guess I have come down with the vaguest, most hard to define ailment of all time. The Docs want to put me on something called Humira to put it in remission. Anyone here have any history/advice/knowledge of this disease and/or treatment? I plan on trying for a bunch of anal with the wife before I inevitably die from the condition. Any comments would be appreciated.

    Congratulations you have just been diagnosed with the most expensive cronic illness around.

    In all seriousness, was diagnosed with Crohn's at age 25 before drugs like Humira and Remicade came on the scene. Doctor pumped me full of steroids in an attempt to reduce inflammation. Nothing worked because of to much scaring of the lower intestine. Went through about a 1 year period in and out of hospital. Life sucked ass for a while. Remicade came on the scene and finally gave me some relief. Went into remission for about 2 years. Again to much damage had ooccured. Went to Cleveland clinic for surgery and had about a 2 foot section of my lower intestine removed. It has been 10 years and for the most part life is normal. As a matter of fact, just got done giving the wife a good old fucking..

    My 2 cents, you need to be pro active. Start to try to listen to the signals your body is giving, don't listen to everyone else who has an idea of what you should try. The doctor has probably told you do everything you can to avoid surgery. This is probably good advise. Humira is a serious drug, but it can be very effective. I would avoid any sterioid if at all possible. Most people with Crohns will tell you the first flare up is the worst, which is True. Once you get it under control, you will learn to listen to your ass

    Good luck my friend, PM me if you want any details or have any questions which you do not want displayed for the community.

    This post was edited by Irritable_Bowel on 2/24/2012 at 11:32 PM

    Irritable_Bowel

  • Don't take modern medicine at face.

    Do some research, eat clean, and fix the issue.

    Chrons is autoimmune. It can be beaten!

    The Matador

  • Very sorry to hear it. GL with everything.

    signature image

    TheBlitzIsOn