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Cancer sucks. That is all

  • 3 bros in the family that have lives and are " too busy to help". Will stay with mom as long as I need to, just a big stress. Docs Gave mom 2-6 weeks eight weeks ago and she still insisted on meddling with my cooking tonight. Love my mom but need a breather

    cadencefan

  • I'm sorry you have to handle this on your own. I watched my mom go through something similar. Many siblings and almost all of the caregiving for my grandma fell to my mom.

    Is there a friend who could give you a little bit of a break? Could you hire some help to even come in for a few hours a few times a week?

    Beaumont Chimes

  • cadencefan said...

    3 bros in the family that have lives and are " too busy to help". Will stay with mom as long as I need to, just a big stress. Docs Gave mom 2-6 weeks eight weeks ago and she still insisted on meddling with my cooking tonight. Love my mom but need a breather

    Sorry for all that's going on with your family. Have you talked with Hospice? They might be able to send a nurse who can spell you, even for a little while. I've been there. You can't do it all by yourself and expect to keep your own health and sanity. Even worse--it's almost sure to affect how you are around your mom at the worst possible time.

    Outside of a dog, a book is man's best friend. Inside of a dog, it's too dark to read. - Groucho Marx

    tGreenWay

  • Sorry to hear that. Best of luck and hope you and your mom get help soon.

    spartans17

  • Just watched my aunt die recently from cancer. Only thing that helped me was fam & friends. She was in hospice.

    mentalstate

  • Mr. Curmudgeon said...

    You should pick up a bag of weed and smoke a joint with your mom.

    FTR, this is the first and hopefully last time I say this, but YOLO.

    In all seriousness though, sorry about what you're going through. My grandpa recently passed, although not from cancer. He basically held on in the last stage of life for several years, and most of the duties fell to my dad (although it wasn't 24 hour care) so I've sort of seen how tough it can be when you have nobody helping out.

    signature image

    Chilly

  • Mr. Curmudgeon said...

    You should pick up a bag of weed and smoke a joint with your mom.

    That's really offensive and inappropriate. Your constant trolling on this board continues to make you and your buddies in Ann Arbor look bad.

    OP - my thoughts are with you and your mom. While I have not had to deal with what you have, my grandpa was just diagnosed with brain cancer and it's already taking a toll on the family. Just remember all the great times you had with her...

    stinkytofu

  • While I was in going to grad school my mom was diagnosed with pancreatic cancer and 5 months later my dad was diagnosed with bladder cancer. I was their primary caregiver while going to school full-time, working part-time, and being a TA. I learned to manage on 3-4 hours of sleep a night. I did this for 2.5 years.

    I'm sorry you are going through this, I know how stressful and tiring it is. I know it is hard, but try and find at least one good thing to be grateful for each day. Like your mom meddling in your cooking - that isn't going to happen much longer and you'll be surprised how sometimes out of the blue you will miss something like that after she is gone.

    If at all possible, and what helped me get through some of the toughest times, was having a friend whom I could go and hang out at her place for a little while in the evening after both my parents went to sleep. I am so grateful I had this place to go to even for an hour or two once or twice a week. Most of the time my friend and I didn't even talk. She would do work or watch TV and I would read. It was just really nice to know I had a place to go and have company and not have to talk if I didn't want to.

    Contact hospice and see if they can provide either a nurse or a volunteer that can come once or twice a week for an hour or two to stay with your mom so you can go take a nap, or go sit in a coffee shop and read, or see if there is friend who can give you a break once or twice a week so you can have some me time. You need it and without it, you aren't much good to yourself or your mom.

    Hang in there and do try and find help from hospice or a caregivers group. Check with your local hospital - they should be able to give you some resources to call.

    I will keep you and your family in my thoughts.

    My inspiration: http://www.lifeasazebra.com/

    Minnie

  • stinkytofu said...

    That's really offensive and inappropriate. Your constant trolling on this board continues to make you and your buddies in Ann Arbor look bad.

    OP - my thoughts are with you and your mom. While I have not had to deal with what you have, my grandpa was just diagnosed with brain cancer and it's already taking a toll on the family. Just remember all the great times you had with her...

    Since when is telling people to smoke a natural drug that helps subdue some of the very shitty side effects from cancer offensive?

    And sorry to hear about your momma OP. Best of luck.

    NGE

  • NGE said...

    Since when is telling people to smoke a natural drug that helps subdue some of the very shitty side effects from cancer offensive?

    And sorry to hear about your momma OP. Best of luck.

    I actually have no problem at all with the suggestion and have certainly enjoyed my fair share of the "natural drug". His comment just seemed a little tone deaf.

    stinkytofu

  • stinkytofu said...

    I actually have no problem at all with the suggestion and have certainly enjoyed my fair share of the "natural drug". His comment just seemed a little tone deaf.

    Hard to tell on the internet sometimes. You may be right. I've never paid attention to his posts before.

    NGE

  • Minnie said...

    While I was in going to grad school my mom was diagnosed with pancreatic cancer and 5 months later my dad was diagnosed with bladder cancer. I was their primary caregiver while going to school full-time, working part-time, and being a TA. I learned to manage on 3-4 hours of sleep a night. I did this for 2.5 years.

    I'm sorry you are going through this, I know how stressful and tiring it is. I know it is hard, but try and find at least one good thing to be grateful for each day. Like your mom meddling in your cooking - that isn't going to happen much longer and you'll be surprised how sometimes out of the blue you will miss something like that after she is gone.

    If at all possible, and what helped me get through some of the toughest times, was having a friend whom I could go and hang out at her place for a little while in the evening after both my parents went to sleep. I am so grateful I had this place to go to even for an hour or two once or twice a week. Most of the time my friend and I didn't even talk. She would do work or watch TV and I would read. It was just really nice to know I had a place to go and have company and not have to talk if I didn't want to.

    Contact hospice and see if they can provide either a nurse or a volunteer that can come once or twice a week for an hour or two to stay with your mom so you can go take a nap, or go sit in a coffee shop and read, or see if there is friend who can give you a break once or twice a week so you can have some me time. You need it and without it, you aren't much good to yourself or your mom.

    Hang in there and do try and find help from hospice or a caregivers group. Check with your local hospital - they should be able to give you some resources to call.

    I will keep you and your family in my thoughts.

    I went through something similar with my parents. On the way up to see my dad in oncology post-op after his prostatectomy, my mom noticed she was having difficulty keeping her balance. A couple of weeks later, she was diagnosed with late Stage IV lung cancer. Although my dad pulled through and is still around today, we lost my mom about 8 months later; about a week and half shy of 911. That was a really, really interesting period in my life to say the least.

    OP, hang tough and do the best you can. Know your limits and boundaries. Sometimes we overcompensate a little in those days, making it hard on us and even harder on the loved one. A couple of days before she passed, I basically broke down, in a manner I hadn't let myself to that point. Those hours proved to be extremely cathartic. I hope you can find your own.

    Take care.

    Osmo

  • "Too busy"? Horse shit! Sorry. You should look into hospice care. They will keep her comfortable and pain free. My grandmother had brain cancer and hospice care was wonderful to have.

    This post has been edited 2 times, most recently by Spartan8Ball on 4/10/2012 at 6:47 AM

    signature image

    Spartan8Ball

  • My sister is on her second run through and my older brother is now on chemo - tough times in the spartytruth family. I am at a loss as to what to do.

    Spartytruth

  • Not sure where you live, but a lot of communities have Respite Care programs. Some are volunteer staffed, some are fee-based, but many insurance companies cover it. You might want to do a quick Google search or talk to your mom's doctor about a program in your area.

    My heart goes out to you. Just know the time you're spending with your mom now--no matter how stressful--will be a comfort later. You'll never regret spending time with her.

    NakidBoibeys

  • cadencefan said...

    3 bros in the family that have lives and are " too busy to help". Will stay with mom as long as I need to, just a big stress. Docs Gave mom 2-6 weeks eight weeks ago and she still insisted on meddling with my cooking tonight. Love my mom but need a breather

    Stay strong. Be there for your mom. No one can imagine what she is going through.

    This post was edited by Hank Moody on 4/10/2012 at 3:24 PM

    signature image

    Hank Moody

  • cadencefan said...

    3 bros in the family that have lives and are " too busy to help". Will stay with mom as long as I need to, just a big stress. Docs Gave mom 2-6 weeks eight weeks ago and she still insisted on meddling with my cooking tonight. Love my mom but need a breather

    It doesn't need to be cancer. I was the only one of five children who lived near my parents. I was the one who did 90% of what was needed until they both were gone. You know, I'd do it again, too. She's only going to be around for a relatively short time. Enjoy that time, and do nothing that you'll look back upon and feel like shit. If you have children, don't think they aren't paying attention. When it's your time, you're covered. The brother's children will be dumping them on the side of the road.

    Loose Stools

  • NakidBoibeys said...

    Not sure where you live, but a lot of communities have Respite Care programs. Some are volunteer staffed, some are fee-based, but many insurance companies cover it. You might want to do a quick Google search or talk to your mom's doctor about a program in your area.

    My heart goes out to you. Just know the time you're spending with your mom now--no matter how stressful--will be a comfort later. You'll never regret spending time with her.

    This is good advice. County health services WILL give you a break--whether your mom has insurance or not. Lots of good people work there. Also, have you contacted hopsice care? Amazing people. Used them for both mom and dad. Truly angles on earth, some of them.

    Loose Stools

  • 3 weeks ago my sister in law had to have her breasts removed because of breast cancer. I can only imagine how tough it was for husband and it was tough on all of the family.

    Being called a sunshine blower is not insulting to me and I'm proud to be one.

    SpartyFever

  • cadencefan said...

    3 bros in the family that have lives and are " too busy to help". Will stay with mom as long as I need to, just a big stress. Docs Gave mom 2-6 weeks eight weeks ago and she still insisted on meddling with my cooking tonight. Love my mom but need a breather

    Don't know where your siblings live but its too bad they can't take turns covering for you on weekends so you can have a chance to keep your life in order while keeping the wheels on for your mother in her last days.

    My mother died from cancer when I was a senior in HS. In late Feb they gave her 12-18 months and she was gone 6 weeks later on Easter. I learned that no matter how much warning you get, how well you think you are prepared for your mom's death it will still hit you like a sack of bricks. As frustrated as you may be with your siblings, keep it to yourself because your venting may upset your mom. Savor the time you have with her.

    GRR Spartan

  • I feel really bad for you. My thoughts and prayers are with you. On that note I'd tell your siblings to piss off when the time comes. Don't let them be there at all for the funeral. If they are to busy for their mom now...screw them ass@s

    signature image

    misterorange

  • so much decency and class in this thread. As for misterorange's advice: ignore it. It won't bring your mom back and you will feel empty if you do that. I know it's tempting, and you would be justified in some ways but, again: it's not the answer. Your siblings will have to live with their actions until their deaths someday and it won't be easy. You on the other hand, have taken the high road and will be better off mentally for it in the long run. (yeah, I get sick of taking the high road too but somebody has to do it, or the world will digress into a cess pool) LOTS of folks in this thread similar to you OP...hang in there.

    spartyon1

  • Thank you all for your words of encouragement. Mom is in the hospice program right now and has volunteers coming in. She can't be left alone because she is weak and is a fall risk. This all started when she caught a bug right after Christmas and basically had the runs on and off for a month. Never told me about it until I noticed she was looking more and more run down.

    Took her into ER and they transferred her right to Borgess with end-stage renal failure (her blood creatinine level had climbed to over 6.5). While at Borgess, they drained her abdomen (and performed a battery of other tests) and discovered cancer cells in the fluid. Determined that she has stage 4 ovarian cancer.

    She still has to have her abdomen drained 3x week, but thankfully, she does not have any pain at all and we're both hoping it stays that way as long as possible.

    My gripe is that getting one of the brothers to stay for one night during the week is like pulling teeth. One of them even decided he needed to get away and go to San Diego for spring break with his wife and kid. But he's never taken a shift to spend the night so I could go home to get some sleep.

    Now I sound like I'm whining. Sorry about that..

    I don't take this out on mom and I don't tell her what's going on with them. She is thrilled like a puppy when any one of them show up.

    Anyway, thanks for letting me vent. I was simply burned out and frustrated last night.

    And actually, the comment about gettting some pot to smoke with her made me laugh. If they didn't do drug testing at work, it would almost be tempting.

    cadencefan

  • My Grandmother (mom's mom) lived 2 houses from my parents for the last 20 years. She was in a house that my dad provided for her. ------- I just deleted about 4 paragraphs of me ripping on my relatives. Bottom line, my mom and dad, and one brother took care of my grandmaw. When my dad was diagnosed with cancer, my mom had to split time between my dad and my grandmaw. It was a lot of work for my mom. She was worn out.

    I called my brothers, and cousins and explained to them that my mom needed help. Some of them would step up for a couple days, and then back to nothing. I finally resorted to the ultimate in public humiliation, I posted it on FB. I sent a very blunt message that if people didnt step the eff up, I was coming back to MI and kicking some ass. Once again, for a couple weeks, we had results.

    The last time I saw my grandmaw, she told me that my dad was her hero, that my mom was a saint. We watched Tigers baseball together. I was in town for just a couple days, but I spent chunks of each day with her because i knew it was the end. I called her every other day from that point, My mom said that it made a huge difference in her peace of mind. It lightened the load quite a bit.

    I think Grandmaw would have lived a while longer if my dad hadnt gotten sick. I truly think that she gave up, because she wanted my mom to be able to give my dad more attention.

    I know it sucks to have all of that responsibility, and all of that work. I have seen what it has done for my mom. It sucks.

    Right now my dad is still battling cancer, my brother is fighting it off as well. Im stuck 600 miles away because this is where my job is, and my wifes job, and it doesnt make any sense to pack up and move. I also cannot afford to be there as much as I would like to help out. I talk to them everyday. But I wish I could be there in person.

    One of my older brothers, even though he is an obnoxious ass most of the time, is truly a saint. He is there everyday. He helps to take care of things. He keeps me updated. He assures me that things are taken care of.

    Taking care of a sick parent is a ton of work, and it will wear one person out. You need to get help from somewhere. Even it is just a friend to come over for a couple hours so you can go have a sanity break. Maybe Hospice can do that for you. I wish you all the best, and I hope you and your mother have some great times through all of this.

    /rambling

    If you laugh, you think, and you cry, that's a full day. That's a heck of a day. Jimmy Valvano

    GatorBill

  • I think you are doing the right thing. You have to do what makes you feel right in how you take care of your mom. Your brothers have to do what they feel is right. Someday you will be able to look back and know that you did all you could, and you will have memories that the others do not.

    Im glad you came here to vent. I believe that this is what makes tRCMB a better place. Sports are a great distraction to real life, but sometimes real life just gets overwhelming and you need a place to leave it all.

    Again, best of luck to you. And to your mom. Im glad she has you around to take care of her.

    If you laugh, you think, and you cry, that's a full day. That's a heck of a day. Jimmy Valvano

    GatorBill